Monday, 9 March 2009

A bit of an update

Thought I'd better post at least something, as it's nearly a month since I last updated. Apologies to anyone who I owe an email to - I know there are lots of emails I've not replied to lately. But life seems quite busy lately.

Part of what's kept me busy the past month was trying to get through a driving test. Unfortunately that didn't happen! :-( I'd hoped to pass the practical part of the driving test before the baby arrived, but I took the test twice in the past month and didn't pass either time. I had several lessons as well (the first instructor not being very helpful or encouraging) and the 2nd one (thanks to the recommendation from my friend Sharon!) was great and helped me loads in just the 2 lessons I had from him the week before last. I managed to successfully (with correct speed/gears/observations etc) do both a reverse around the corner (which I failed in my first test) and a parallel parking (my most feared "skill"). However, just after that, I got "seriously faulted" (i.e. failed) because I approached a blind junction in 2nd gear (instead of 1st) and the nose of the car was too far forward into the junction. The road is very narrow with the house walls right up next to your car, and the "give way" lines faintly painted on the road - some junctions being "give way" for traffic the other way etc, so slightly confusing really. Anyway, I still felt quite annoyed that I'd messed up on something that ought to be so easy. But there's no slack with UK driving tests. So, just have to put it behind me for now. There's no way I wanted to take a test any later in my pregnancy (having done the 2nd one at 36 weeks!). So maybe some other time I'll try again. But at nearly 60 pounds for each try, it could be an expensive experiment!

There's me at 36 weeks! (self-portrait of sorts, so no face included! lol) I had a scan on Friday last week (36w 2d) and the baby was measuring 37w 1d, so should mean a healthy sized baby. Everything was just perfect (position of placenta, amount of fluid, baby's size etc), so consultant was happy and signed his approval of my plans for home birth. That was really the reason for the scan this far along, to make sure placenta especially was in good position. Seen my community midwives today and baby has started to drop into place, so that's good too. :) They'll be bringing round the "home birth kit" (all their gear) next week. I'm sure I had everything here the previous times when I was only around 37 weeks (which I'll be this Wednesday), but they're not delivering the stuff (or going on call) until I'm 38w 1d - so just hope baby doesn't decide to come anytime before then!

Here's Benjamin and Abigail playing in a box together. I think they were pretending it was a boat.

Oh yes, was going to say that we learned the other day that Benjamin has a very good memory! Abigail has quite an amazing memory for insignificant things and remembers them in great detail. But we hadn't realised Benjamin did too - until last Friday when we were at the hospital for my scan. We were in the waiting area where there's a table of toys/books for children and Benjamin started to get upset and said "it's missing - it's missing" (or something like that). We asked him what was missing, assuming he meant his favourite Pooh bear (or the plastic bunch of bananas he'd brought along for Pooh!) which were in the pushchair, but he replied saying "the fish is missing!" It was *then* that I realised what he was talking about! When we were at the hospital before (for my 12 week scan in *September*) there was a large stuffed fish. Something from a Disney film I think, and about 2-3 feet long. He remembered it! He'd only ever been there *once*, and 6 months ago at that! Obviously being such a big stuffed toy it made quite an impression on him - but still, to think something he saw briefly when he was 18 months old, he still remembered!

Benjamin lying in the baby's bed! He doesn't quite fit like he used to! lol


Benjamin wearing a special suit of clothing I made for him (minus the wet bib, which was to help keep his neck dry while he had a nasty cold that made him dribble a lot!). I managed to find a pattern from USA (which I could buy, download & print) for a sleepsuit which goes up to size 4y (the one he's wearing being 3y) and I modified it to have the opening in the back instead of front, and put a zip in. So, this is my version of a secure eczema day suit! :-) He manages to get his hands into *anything*, even the mitten suits that the speciality companies sell for 30 pounds each! I got him some sleepsuits from Verbaudet (a French company) which have poppers on the back and back flap (which I sewed up), but they only go up to 3y (which he's nearly outgrown already), and they have a seam across the foot (which is right where his worst eczema is), so aren't ideal. So, I'm hoping to have a major sewing session in the next week or so and get him several of these made so he'll have some clothes to wear (around the house at least!). I have approx 42 metres of fabric being shipped to me this week (no, not all of them are for Benjamin!). But I happened to be looking on eBay for some cotton jersey fabric to make him some clothes, and it happened that the very day I looked, a lady (who I bought fabric from last May!) had just listed 13 auctions, each with about 6 metres of fabric. All cute cotton fabrics (cord, jersey, sweatshirt fleece, canvas) with lovely children's prints, for both boys & girls! And they're all a discontinued line of fabric from USA which has bright print on a white background, meaning it can be dyed to any colour! (The one he's wearing above was made from that fabric). Best of all, when the auctions ended on Thursday last week, there was hardly any interest and I got the fabric for next to nothing! So I was very excited to say the least - and best of all, nice boy prints to make clothes for Benjamin - at the very time when I was most in need of finding suitable fabric!

Anyway, sorry for the long ramble about fabric! However, if you knew the stress of dealing with an almost 2yo boy with rather severe eczema, you might understand! :-) Sometimes I'm not really sure what to do with him! I think my last blog was after we'd first taken him to the doctors and he was on his first course of steroids. Anyway, the eczema just about cleared up while he was on the hydrocortisone - but 2 days after the 10 day course of it, the eczema was back, and worse than before! We took him to the doctors again, this time seeing a different GP - but again, he just said to have another course of the same. He did give us different cream & stuff for the bath (both for moisturising). Again, the eczema cleared up quite nicely while taking the steroids, but 2 days later, it returned and even worse than the last time. I am very wary of putting them on him again - it seems that doctors really aren't coming up with any solutions for it, and at least in Benjamin's case, the resulting eczema is worse than before steroids. Plus, they can thin the skin, so aren't a good idea to be using all the time. Where to go from here, I really don't know. So far, what seems to actually give Benjamin the most relief is Beelief Botanics Emoliex First Formula ( http://www.beeliefbotanics.com/proddetail.php?prod=emoliexfirstformula_50ml&cat=7 ) which is all natural. I can't say it's actually clearing the eczema up, but it makes him feel a *lot* better! It has lovely cooling properties (from the lavender). When he wakes up in the night miserable and scratching, he is soothed back to sleep by me applying the above cream. You can tell it relieves the itching and cools his skin, but I just don't know how to keep the eczema better under control. We bought some Propolis repair cream from the same company the other day, so I'm trying that on him too. At the moment he's got inflamed skin on both feet, behind both knees, his neck (front & back), and all around his face. I'm just trying to "manage" it at the moment, watching him all the time, trying to keep him cool, in secure cotton clothes to cover most of the skin etc. But it also means I'm not getting much sleep - he was awake for a period of time twice last night - quite miserable. I hate to see him in such discomfort, but I feel that continuing the steroids is just making him worse, so guess we just have to see how things go over the next days/weeks.

One last photo of the children, which was actually meant to be above with the other similar pic.
Must get to bed, though I think I hear Benjamin stirring - so might not get to sleep for a while yet. Oh well - such is life for a mother, I guess.

8 comments:

Anonymous said...

Have you tried eliminating dairy from his diet. Not easy to do but there are strong links between excema and dairy products.

Just incase you don't know already never use bio washing powder or fabric softener and if you do stop using them they do take several washes to flush out of the machine.

Also use an ointment which is oil based as opposed to a cream which is water based only problem is it does make for a sticky child. We used emulsifying ointment and loads of it several times a day.

It can get better with age - my nine year old still has it but nothing like as awful as when he was a baby. It suddenly got a lot better when he was about 3.

Rachel said...

Can't think who "Anonymous" is, but thank you for your comment! :)

I tried eliminating dairy from Benjamin's diet for about 2 weeks (tho the odd thing might have slipped in at some point). We didn't notice any improvement, and since it was rather difficult (him *loving* dairy products) we went back after 2 weeks. However, I since read people saying you really needed to go dairy free for 6 weeks to know for sure. It was goat's milk we used during the 2 weeks, so only really eliminated cow's milk products - and haven't tried lactose free either. We did ask the GP about the possibility of allergy testing, but he said it was completely useless for young children! Seemed rather an odd thing to say - more likely it's just that it's not cost-effective for the NHS since children often outgrow allergies! He drinks a lot of apple juice, as well as eats plenty of tomato based meals - both foods often being bad for eczema. But at the moment if I cut out the apple juice, he ends up not drinking anything, which makes him feel worse than with the juice!

I've usually used non-bio powder but *have* until recently used fabric softners. At the moment tho(for the past 4 weeks or so) I've been washing all of his clothes & nappies in Surcare, no fabric softner, and then tumble drying them to keep them soft. Don't know if that's the best thing to use or not. Before going over to Surcare I'd tried Ariel but it gave him an awful rash on his bottom, and ever since he now has a bit of eczema there (first time ever!), so will never use that again. Just hoping that Surcare is the best thing, as previously I used a cheap non-bio you get from Savers, and he didn't have any nappy rash, tho I'm not sure it cleaned the nappies so well.

Anyway, thanks for your kind comments! :)

Evelyn said...

I was just about to say the same kind of thing as anon did, perhaps a food allergy...I would press the doctors to do some testing!!

AND I'm kind of now wanting this ladies ebay id or something because if she starts to sell things of what I've seen you use...she could have another buyer on her hands. :) So if you still have her info... would you mind passing it on? ;)

You don't look very big...I must be huge then for only 30 weeks :S!!!

Ev xx

Rachel said...

Thanks for your comment, Ev. Will try to email you later tonight! :) xx

Melissa said...

We're constantly battling some sort of dry/scaly rash on Rebecca... I'm guessing it may also be exema. We just started putting Eucerine on it every day on Saturday evening, and it's really worked wonders... she's got nice "baby-soft" skin again! Don't know if you've tried that at all. Another thing we've done is used just pure olive oil on her, and it's done nicely. The only thing is, with her being so small, and not walking or anything yet, it's hard to carry her around freshly oiled, LOL! I'm kind of dreading the introduction of solids considering our constant battle already!

Something you might try in the food dept. is trying to really rotate your meals. So rather than having a lot of tomato meals, have only one or two a week, similarly with pretty much everything. It's tons of fun, I know... we're having such a great time here with allergies at the moment. :-S Right now we're having three rice-based, two pasta-based, and two bread-based main meals in a week, and I'm seeing big changes in everyone's reactions, but it's taken a while to really figure out *how* to do it.

Sharon said...

I provide childcare for a little girl who has soy and egg allergies, and another little girl who has a peanut allergy. Seems like food allergies are so common these days! I'm glad my own children have been free of food allergies thus far, so that at dinner time at least, I don't have to worry about sending anyone into anaphylactic shock!

Can you try substituting another kind of juice for the apple juice? Orange juice maybe? Orange juice would be more nutritious as well, though perhaps more expensive.

Rachel said...

Melissa: Not sure we have tomato foods *that* often, but at least a few times a week I guess (if you include ketchup). Not heard of Eucerine before, but then again there are sooo many different moisturisers out there!

Sharon: I *think* orange is supposed to be even worse (more acidic) than apple. I tried pear juice, which is a much milder juice, but he just wouldn't drink it. He said "it's nasty!" LOL :)

But I'm guessing I'm going to have to think of something soon, as his skin was looking really awful at bedtime tonight. :( His poor feet were terribly red, inflammed, and the skin is soooo rough. The steroid cream certainly makes it very smooth - but if it's worse again as soon as they're stopped, then I can't see any way they'll work, except steroids full time - which isn't the idea of them!

Melissa said...

I was talking with my mum, and she said that apple juice is actually considered to be more acidic than orange juice, the only difference is one is a "clear liquid" so better for when you're trying to push the clear liquids, like when the kid has a cold. Will he drink grape juice? I know a lot of kids like grape, and I think it would also be milder than apple.

Eucerine is actually a facial moisturizer, normally in the cosmetics section, but it's got next to nothing in it (water, mineral oil, lanoline alcohol, and a couple of preservatives) and is the first thing they normally try on infants... we've been through a lot of creams and such trying to find something that works for Rebecca. I'm not anticipating it working permanently, but it would sure be nice if it does!